The Crip Trip Disability Podcast

TikTok Influencer Erin Novakowski

Episode Summary

Danny and Fred are joined by TikTok superstar Erin Novakowski to discuss the naming of the RV, the reinvention of traditional life milestones, and the disparities exposed by COVID-19. The trio also tackle the significant issue of ableism.

Episode Notes

Danny and Fred are joined by TikTok superstar Erin Novakowski to discuss the naming of the RV, the reinvention of traditional life milestones, and the disparities exposed by COVID-19. The trio also tackle the significant issue of ableism. 

Chapters

Guest Bio: Erin Novakowski (Calgary)

Erin Novakowski is a 22 year old writer, university student, and self proclaimed Instagram Baddie who is a Tiktok influencer in the disability sphere. She is a full time power wheelchair user, in school she studies Political Science and English, because her parents weren’t disappointed in her enough when she got a nose ring. When she isn’t busy with school or her work, she enjoys oversharing on her private story and making thirst traps for Tik Tok. She’s passionate about disability representation and advocacy, and you can often find her cyberbullying ableist politicians via Twitter. Besides her work online, she enjoys painting, chugging coffee, and cloud watching. 

Episode Transcription

Hold on.

 

And 3, 2, 1.

 

It's Danny and Fred, they have a Crip Trip podcast.

 

This podcast contains strong language

 

and adult themes that may not be suitable for all audiences.

 

This podcast takes place in Calgary, Alberta.

 

It was recorded in the Crip Trip RV.

 

Hello Crips and criminals.

 

Welcome to the first ever Crip Trip podcast.

 

We're here in Calgary, Alberta with Erin Novakowski,

 

Noted influencer

 

and magnanimous individual who puts up with our bullshit.

 

I'm joined here with Frederick Kroetsch. Ally,

 

fellow shit disturber,

 

[Laughs]

 

and we limped our way here last night

 

after breaking down

 

and got thoroughly roasted by our social media manager.

 

Erin Novakowski so thank you for that.

 

It's what I get paid to do.

 

[Laughs]

 

How, how are you doing? I'm good.

 

I'm living. -Yeah. I'm alive. That's all I can ask for.

 

We didn't keep you waiting too long in this

 

sweltering heat.

 

Yeah,

 

I've melted. Probably never walk again.

 

[Laughs]

 

Happens to the best of us, Right, Fred?

 

Yeah. Yeah. -Can you relate? -I

 

You Can relate to that, Fred?

 

No, I, no, I'm abled, You're abled. Say it again.

 

I'm able-bodied With your head down.

 

I'm an able-bodied person. -And more shame.

 

Ugh

 

She should be a director. I just can't win.

 

She's doing a better job than I do (indisticnt). -I can't win.

 

But we are here in, we need

 

to name this RV. It needs a name.

 

True. Come up with a name.

 

Do do you have any suggestions

 

that we should take into account?

 

No. I'm just a visitor. I'm just a guest.

 

This is your guys' baby, so -It's very hot in here.

 

I got a couple ideas. Do you want to hear 'em?

 

I absolutely do.

 

Roxanne.

 

Roxanne. Okay. -Because she's a working girl. -Mm.

 

And at night we put out the red lights

 

to do photo developing.

 

So do you have any recommendations for names, Fred?

 

Ugh huh

 

I need to think about that.

 

I, none of the names I'm coming up

 

with are appropriate for a podcast.

 

Fair enough. You know, you gotta workshop things,

 

Hey everyone.

 

Okay. What if you named her Erin?

 

Oh, yeah. Just, just 'cause I'm cool.

 

[Laughs]

 

I'm, I'm not opposed to it. Okay. Well then it's settled

 

Your name carries weight, so you know,

 

it would be recognizable.

 

So many jokes that I can't say right now.

 

Say them. -No. -Come on try. I'm not going to.

 

Something about being inside you.

 

I'm sorry that's inappropriate,

 

[Laughs]

 

but like, I'm just saying, it's funny.

 

Where are you? We're inside Erin right now.

 

It's just weird to name it Erin. That's it.

 

Okay. Yeah. I'm, I'm, I'm now

 

It was a joke.

 

Sorry. It was only a joke. Okay, Fred?

 

So don't be gross.

 

For the record I said I wasn't gonna say it and you asked.

 

For the record.

 

Fred is a [Whispering] pervert.

 

For IDV, she called him a pervert.

 

I, I called him a pervert.

 

There you go.

 

Alright. So we wanted to talk to a bunch of people

 

with disabilities about different, important issues.

 

And one thing I really wanted to address is this idea

 

of milestones in your life, right?

 

And, you know, the prospect of missing milestones,

 

whether it's like moving outta your parents' house

 

or going to all these house parties

 

and just like the, the general lag time that people

 

with disabilities have.

 

Did you ever experience anything like

 

that when you were in high school?

 

Yeah. All the time. Constantly.

 

I mean, I am literally still experiencing it right now

 

because I'm a fifth year student

 

and I watch myself work just as hard as everyone else

 

for my first four years of my degree.

 

And then everyone that I started with graduated

 

and then I had a whole identity crisis over it.

 

But yeah. High school for sure.

 

That was probably the first time that I started noticing it

 

'cause it was like relevant in my everyday social life.

 

But yeah, like even just house parties.

 

Nobody has, it seems like nobody wants to,

 

Accessible houses.

 

Nobody wants to get up off their ass

 

and make an accessible party.

 

Yeah. So it's just a little frustrating.

 

Well, and you know, especially when we were growing up,

 

I think it's, it's a little bit different now,

 

but like we were so invisibleized that like

 

people just didn't anticipate

 

inviting people with disabilities.

 

Yeah. -'cause they didn't see them, right. -Yeah.

 

So it's this, you know, self-reinforcing cycle

 

of the thing is inaccessible.

 

So we don't show up. So people don't make it accessible

 

'cause they think disabled people don't even exist.

 

Exactly. But exactly like you,

 

I took seven years doing my college degree

 

and I did an honors degree.

 

Yeah. -So I watched my cohort go off

 

and then do a masters. -Yeah.

 

And start a PhD in the time I was just finishing up. -Yeah.

 

So you do have that anxiety of like, am I doing enough?

 

And, and the, the, the constant drive

 

of like western culture to be like, I need

 

to be producing, I need to be producing.

 

I'm lagging. What am I doing? I don't have a family yet.

 

I remember we had a farm party, a pretty crazy farm party

 

and Danny and Jar came to it.

 

And I think that

 

Jer is my cousin.

 

And his like, and caregiver and stuff.

 

K -And we were there and I think,

 

I think it was like the first time you'd left your

 

house overnight or something.

 

And I was like, this, I'm honored.

 

This is a really good, this is a

 

really good thing to have come to.

 

'cause it was crazy. But I was like, I was like, what?

 

That's crazy to me. Yeah. I can't even fathom that.

 

You know? You know what I mean?

 

Yeah. -The, the, the first time you

 

overnight anywhere.

 

Right. There's so many access considerations.

 

Even getting out to the farm party. Right.

 

I was bringing my manual chair.

 

I didn't bring my power chair.

 

This was before we even had like, accessible vehicles

 

to like really make ease and like

 

before accessible vehicles were a thing you could rent.

 

Right. And that wasn't that long ago.

 

You know, like, that was

 

Six, seven years. Eight years.

 

Yeah. Yeah. -Nine years -Near the beginning

 

of our hanging out,

 

Beginning of our, not even a friendship?

 

We were friends -We, we, we were friends and we were

 

The beginning of our hanging out

 

Of whatever this is. I don't want to name this.

 

It was what do you, what? (off camera) You were friends? -Just

 

(off camera) -Yeah, we were friends. [Laughs]

 

Well, that's true.

 

Do you guys need a moment? We were friends.

 

I don't know where we are now.

 

Do you guys need a moment to work it out on the remix?

 

Sorry, that was a pop culture reference

 

that you probably wouldn't understand.

 

Work it out on the remix.

 

That's a Chappell Roan song? No.

 

It's a Chappell XEX song.

 

Chapell? -Chappell XEX. Nice. Sorry. How, how

 

Jojo Siwa.

 

You know the girl who invented gay pop music? Oh yeah.

 

Oh yeah. Jojo.

 

There you go. You got one. Sorry.

 

He was sorry (indistinct) I'm old.

 

But yeah. So like Fred,

 

when did you move outta your parents' house?

 

Oh, like when I went to university. So I don't know.

 

So like immediately? Yeah. I dunno 17 or whatever.

 

Okay.

 

And where we were living in Montreal was probably the

 

least accessible place in Canada.

 

It was all tiny walk-ups with tiny little rooms.

 

Like, but again, I never, I didn't know anybody

 

who had a disability,

 

so I never thought about that sort of thing.

 

Well and I like to illustrate a point, right?

 

Like, you know, so you went to Concordia, right?

 

Which, so you move cities at like 17, you know,

 

you moved into a college dorm, you know,

 

and then what, what was the

 

lifestyle like when you were there? Right?

 

It was intense. Yeah. A lot of partying.

 

Yeah. Yeah, exactly right.

 

So we have this, you know, we've been shut out

 

of, of the culture just due to like access,

 

like just wrought iron access, being able

 

to like get into an apartment building a, a house.

 

And you know, even the, even the prospect of traveling,

 

and this is one of the reasons why, you know,

 

I didn't do grad school was

 

'cause I'm like, okay, all of the schools I want to go

 

to are in different cities,

 

but like, I can't get divorced from my family

 

because they're 90% of my care.

 

And you know, to the point

 

where the provinces don't even communicate.

 

So getting care work in another province is

 

exceptionally difficult.

 

Right. You need to get on their health program

 

before they even start paying for it.

 

So the barriers to even contemplate doing that we're, we're

 

so mind blowing that it kind

 

of killed the prospect of grad school.

 

'cause so much of grad school was shotgun your resumes

 

across North America and just go to wherever accepts you.

 

Right. So I know you're on the tail end

 

of your degree right now.

 

Are you thinking of doing grad school or stuff like that?

 

Or have you seen any changes?

 

You're you're in there a little bit. I mean After I am

 

No, in terms of like moving cities, like I think for sure

 

the actual like post-secondary institutions are probably

 

more accessible than like they were five years ago.

 

But like the prospect of me to move anywhere else is like,

 

so like insanely overwhelming that like, it,

 

it's not even like a feasible option.

 

And that's really sad.

 

'cause like when I started school,

 

school was always like my favorite thing.

 

I loved school. I had like a little like Gilmore Girls,

 

Rory Gilmore Dream.

 

I was gonna like go to

 

Harvard. Harvard or Yale.

 

Yeah. Like literally like, and,

 

and I was like researching schools like way back in,

 

in high school and I started at like a

 

new, like a different country.

 

Like wow, look at this amazing school.

 

And then I like realized like, yeah,

 

there's no fucking way that that's gonna happen.

 

Then I like scaled down

 

and I was like maybe BC I could move one province over,

 

you know, like it's still Canada.

 

I got into the school but it wasn't possible

 

because there was like, unless I took three years of my life

 

to plan my first year of university, it wasn't gonna happen.

 

And then I thought maybe within the

 

province, but a different town.

 

I got into that school too, I couldn't go

 

because actually that one I really stuck to for a while.

 

And I took it to like a transition meeting.

 

They had like a transition services with,

 

I don't know what the f* * her job was. An OT probably

 

Yeah. So some kind of social worker

 

or occupational therapist.

 

Yeah. That is there to assess you, to help you

 

Yeah.

 

Plan for whatever future you want to build.

 

And I came, I was so prepared.

 

I had all these like information,

 

I had information about the accessibility

 

of the dorms in Edmonton, like where I could live, like

 

what the accessibility,

 

like I had already contacted the accessibility office in

 

Edmonton, things like that.

 

I came there and I immediately told her this

 

and I think like I'm quite sure that like her as well

 

as my parents, like I came in, I was like,

 

so like I wanna talk about like

 

moving to Edmonton for school.

 

And I'm pretty sure they all laughed.

 

Like they like, they were like, yeah, yeah, that's nice.

 

So like you are gonna go to U of C or Mount Royal.

 

And I was like, okay, cool.

 

So like Yeah, completely ruining

 

that like autonomy and excitement,

 

that energy you have to like migrate

 

and like do something autonomous, you know?

 

Yeah. Literally. And it was just like,

 

and that's when I realized like, it's not like the amount

 

of work you put in, like I thought maybe like,

 

it just takes a lot of planning.

 

It just takes like, but like no matter the amount

 

of planning even now, like okay then how,

 

like I can plan the s* * out of where I'm gonna live,

 

but that doesn't mean I'm gonna have access

 

to healthcare right away

 

or if I move provinces, like half of my equipment is owned

 

by the government of Alberta.

 

Yeah, exactly. My wheelchair is

 

So what happens to that? Yeah.

 

Like it's just not like,

 

I genuinely dunno how to make it happen. So.

 

Well, and it's it's just

 

so heartbreaking when you finally have that discovery Yeah.

 

No amount of like individual

 

advocacy and effort. Yeah

 

And like, you know, scholarships even. Yeah.

 

I know plenty of people who have various scholarships

 

and they still couldn't make the Yeah.

 

make the grade to pay for what they have to do. Right. Yeah.

 

So it's, it's deeply ingrained into our social structures

 

that, you know, despite things like freedom

 

of movement being quYeah.

 

Codified in our constitution.

 

For who? Pepeople

 

with disabilities absolutely don't have that right.

 

Yeah. You know, there, there are so many things

 

that shackle us to the province world.

 

Like, okay, so I went to Montreal

 

'cause it was one of like, I don't know,

 

four film production, school degree programs in the country.

 

The Alberta only had like film studies, right?

 

Yeah. Yeah. But if they'd had film production,

 

obviously I would've gone to school at the U of A

 

because that would've been easy and cheaper.

 

Why don't you do grad studies at U of a?

 

Well, the reason for me was there's

 

very specific programs.

 

So like clinical psych is very different than counseling

 

psych, which is different than, you know,

 

what's called a PsyD.

 

So there's different types of grad school, right?

 

So the type of work that I wanted

 

to be doing was clinical psych,

 

but there's like maybe three schools in Canada

 

and they're all over the place.

 

So you have to go where your field is. Right?

 

So there's certain research interests that are codified

 

to location because their faculty is invested,

 

invested in a certain topic, right?

 

So if I wanted to go do research about people

 

with disabilities, there are specific faculties that deal

 

with that one specific thing.

 

But is, isn't there a point of compromise?

 

And like, okay, so I I it's not feasible for me to go

 

to New York City and do this clinical stuff.

 

Yeah. But there's gotta be something you could do.

 

So this is, this is a conversation about

 

COVID-19 now, right?

 

Because so many people with disabilities wanted access to

 

distance learning opportunities.

 

Right? And we were always told

 

by these institutional faculties that there was no way

 

to make it work and that it was too much effort

 

and you weren't getting what you needed outta the

 

education, blah, blah, blah.

 

Then covid hit and it happened overnight.

 

So now they had all, they all of a sudden had options.

 

And you were, you were in

 

university when that transition

 

happened. Yeah. What was it like watching that?

 

I mean, it was like super f* * * up

 

because like you said, like I had even, like,

 

I had only been in university for a year.

 

It was at the end of my first year that covid happened.

 

And like, I remember just struggling.

 

And then I was trying so hard to have a full course load be on

 

campus every day and like it was exhausting me.

 

Like truly like the workload

 

and like my brain could keep up.

 

And that was great. And it was really frustrating

 

that like my body could not,

 

but I knew that if it was like delivered differently,

 

like if I could like take one course at my own pace

 

online, that would've helped a lot.

 

But it happened immediately

 

and then everyone like complained about it for a bit,

 

but then all of the ableds started to get used to it

 

and they, oh like this is nice.

 

Like, oh, I don't even have to leave my house. Oh, like

 

Yeah, I can wear my pajamas in the (indistinct) class. Yeah.

 

I can, oh I'm comfy. Like, oh, I wasn't feeling good

 

but I can still come to class.

 

Like, so So the access things are helping everybody. Yeah.

 

Everybody was loving it

 

and like, that's the thing, it's just like I was watching it

 

and I was like, okay, so as soon as you need it you get it

 

as, but like for years when we're asking

 

for it, it's like nobody needs that.

 

Go f* * yourself. So,

 

And then they transitioned away from it when they

 

declared it over.

 

Yeah. Right. They took it away

 

And then, and then what happened

 

to the university atmosphere after that?

 

Did you feel safe in university? No.

 

When they pulled all the masking requirements,

 

No. Even when there was masking requirements on campus,

 

like students wouldn't wear them.

 

Students, there was like this one little f* * *  bitch a* .

 

Can I say that? Yeah, yeah, go for it.

 

He like would purposely like see me wearing my mask,

 

like all masked up, like whatever.

 

And like he would like pull his mask down over his

 

mouth and he would like wear it like that.

 

Just like in the hallway.

 

Like while I was waiting for class

 

and I would like make eye contact with him

 

and I would all the time be like, could you

 

put your f* * *  mask on?

 

And he'd be like, "oh, there's no one here."

 

And then as soon as the prof would come by,

 

he would put it on because

 

that was like one good prof. He was super good about

 

Enforcing Mmhmm the mask

 

like he wouldn't let like let people contribute to class

 

unless they had their mask on

 

Yeah. properly. And yeah

 

so it was just like so frustrating.

 

Like people didn't give a s* * and yeah, I guess. Yeah.

 

Well and there's something frustrating about, you know,

 

it being so easy for an able-bodied person

 

to just slap on a mask.

 

No. Literally. You know, pull it

 

down when they need to drink something.

 

Yeah. And yada yada yada. Yeah.

 

Meanwhile for me, I need an intermediary Yeah.

 

to like put it on my face, get it off my face when I need

 

to drink, put it back on my face.

 

Yeah. And then, you know, I have bad heat regulations,

 

so now I'm sweating infinitely.

 

That was the other thing, like since covid.

 

So like I had covid, I got it.

 

And ever since then, like my voice is like way

 

weaker than it was before

 

Mmhmm

 

I had covid. And I'm also like, when I wear a mask,

 

I can't like breathe.

 

Like my breath is not strong enough

 

to breathe through the mask.

 

So I start like sweating, overheating. Yeah.

 

Like hyperventilating.

 

And it's really like, I went through a long time of like,

 

like, I don't know, like I could go out without a mask

 

but like I'm not comfy doing that yet.

 

Yeah. And like I literally can't wear a mask at the

 

moment because other people didn't care enough

 

to like not give me covid.

 

Well and So sorry you guys are both saying like you covid is real.

 

Oh yeah. Really? [Laughs]

 

Sorry. I'm channeling my Joe Rogan podcast.

 

It's my first podcast guys. I'm sorry.

 

We, we gotta do horse tranquilizer

 

and snortsnort gungunpowder that'll

 

That'll get And vermectin.

 

Yeah. (off camera) II Ivermectin Yeah.

 

I mean, you know, like, and it's just the blatant disregard

 

and then, you know, the minute they deem it over all

 

of a sudden they make it unsafe for us to attend.

 

Yeah. And now all of those digital

 

means are disappearing.

 

Right. So then it's just segregating us again. Right?

 

And it's super f* * * frustrating to see

 

that you can do something, see it implemented

 

and then see it ripped away.

 

Yeah. Same thing with distance work. Right.

 

Being able to work from home again, that is something

 

that really helped people

 

with disabilities get unstratified from poverty

 

because oh look all

 

of these job opportunities aren't requiring me

 

to come into work and it's just, you know,

 

clerical, bureaucratic, whatever.

 

Well, okay. You know, maybe the, the silver lining of

 

that stuff though in our industry

 

and tv, COVID totally changed it and it's still there.

 

Yeah. Because why fly a bunch of editors to come

 

to an office and (indistinct) when they can just remote edit,

 

like on our show, this is gonna be remote edited.

 

And so I think that opens it up to

 

so many more possibilities.

 

Wherever you are, whoever you

 

are, what your accessibility is.

 

If you have a computer can edit. Yeah.

 

You can now work in tv. So that'sAnd it's

 

Still there.

 

And it's, it's funny 'cause our industry is like one

 

of the most progressive in a lot of aspects.

 

You know, they, the way that they militantly enforce,

 

you know, things like representation, right?

 

So if there's a grant for black filmmakers, right, you have

 

to prove that the ownership

 

of the company has a certain amount

 

of black people who own company.

 

Right. Because they saw that certain companies were getting

 

around that by putting people in the, the lower aspects.

 

Right. That was one

 

of the things they brought up when I was over at Hot Docs.

 

And yeah, there's a lot of wisdom being shared in there.

 

You know, care is, care is in the budget lines. Right.

 

So, you know, giving people

 

with disabilities the means, right.

 

Even the continuity. Right.

 

If, if we at least had some kind of connection

 

between provinces,

 

it would open up our worlds pretty, pretty starkly.

 

Yeah. Right. Yeah.

 

So what's your, what's your housing situation like?

 

That's another thing that like really

 

interferes with milestones, right?

 

Being able to move out into your house.

 

What was, what was it like the first time you're like,

 

I'm gonna move out with Jared

 

and you know, try, try and try

 

and strike it out on our own

 

and have our own space that we can.

 

So first of all, Calgary is already like a s* * show.

 

There is no like open apartments.

 

Like everything is like so expensive. It's awful.

 

Like so with him like obviously

 

I'm the first cripple he's moved in with [Laughs]

 

Lucky boy.

 

Yeah. So like with him, like it's just the way,

 

like sometimes not to say that men always do this,

 

but sometimes men don't like to plan very much.

 

Cough. Cough. When you guys showed up.

 

I don't know what you're talking about

 

You guys showed up two hours late.

 

I find the insinuation vaguely insulting.

 

Anyways. I had to poop, I'm sorry.

 

Yeah, I know we had, you had to poop. Anyways

 

so like I was planning, I had, I was like, okay, as soon

 

as we decided that's our

 

plan, we're gonna find an apartment.

 

I was like, okay, we have to start looking now.

 

And like he very quickly in like searching for apartments

 

with me started to realize, he was like,

 

oh this one's in our budget and it

 

has none of the stuff that we need.

 

Yeah. Oh this one's in our budget

 

and it's in a good spot in town.

 

It doesn't have an elevator to get in.

 

And like, so I think he really quickly realized

 

like, oh it's not that easy.

 

But we were still like optimistic

 

and we found a place that was in our budget

 

in the part of town we needed.

 

And I like sacrificed a lot

 

because I knew it wouldn't be as comfortable

 

A hundred percent accessible.

 

It wouldn't be a hundred percent accessible.

 

I thought I could make it work

 

to the point where it would be comfortable.

 

But everyone that works in like medical supply, whatever.

 

Yeah. All those intermediaries that they're paying to,

 

they're f* * *  Install shit

 

And they're paying to be useless.

 

Yeah. Literally. So like it was just a whole s* * show.

 

I signed a lease under the impression,

 

well not under the impression.

 

I was like directly told from people

 

who had checked out the space.

 

Like we'll make this shower accessible for you

 

and we'll put in the lift, whatever. It took them

 

Did you get it in writing or was it all verbal?

 

No, I have an email of them saying, There you go.

 

Yeah, we'll be able to put this in your space and whatever.

 

And then they couldn't admit

 

that they were stinky poo poo dumb dumb wrong.

 

And they like just ignored me for months.

 

Yeah. And then after four months

 

of me living in my apartment paying way more than I can

 

afford on rent and not being able to shower in my own space,

 

they finally were like, yeah, we can't do this.

 

So like, let's try and figure something out.

 

Like something else out for you I guess.

 

So we've lived here how long it's been April, May, June,

 

July, August.

 

So five months. I haven't been able

 

to shower in my own apartment.

 

What? I have to drive across town. That's f* * *.

 

And just the last thing on that, an OT came

 

to do like a yearly assessment, whatever.

 

And I didn't ask her for her advice.

 

I didn't ask her for help with this problem

 

because I did not think she'd have any great solutions.

 

But she asked me like, is your bathroom accessible to you?

 

And I said no because it's not.

 

And she said, oh, like what's the problem?

 

And then her suggestion, like she still like has said it

 

with like a smile on her face and like so happy.

 

She was like, yeah well like, you know,

 

if it doesn't end up working out, like maybe you could look

 

into going to the YMCA to shower there. [Laughs]

 

And I was like, sorry, you're getting paid

 

to help disabled people.

 

Like just live. Yeah. Like just the bare minimum.

 

And then they give you the wildest just dumb advice

 

where they're like, go use this public resource

 

that probably 90%

 

of the time doesn't even do what they think it does.

 

No, literally that's the thing. And like it was just like,

 

I was like truly like, how dare you come into my house,

 

look at me, ask me if it's accessible.

 

And when you hear me say no, like

 

how dare you be like "well try the YMCA." Like shut the hell up.

 

And these are bureaucrats whose whole job

 

it is to like whip medi

 

Yeah. medical like intermediaries. Yeah. into shape. Yeah. Sure.

 

And like get that shit for you. Right.

 

And the fact like it's just never a high priority for them. Yeah

 

They're like, ah, well you can deal for a while

 

and this is like how we end up

 

getting f* * * institutionalized. Okay so Do a quick follow up

 

Do a what?

 

Follow up. Yeah. Well yeah. Okay.

 

So you know you're having,

 

you can't have a shower, you haven't shower in a week.

 

You are upset. You get up the pick up the

 

phone and you call Crip Trip. Right. Okay.

 

Yeah. Danny, Fred, I need an accessible washroom. Okay.

 

So the Van RV pulls up. David Baron

 

and David Puffer camera guys jump out with tools. [Laughs]

 

Right. And we accessible-ize, we visit-abilize

 

There's a good title here, I don't know it yet. [Laughs]

 

And then we, we show up

 

and we make people's houses accessible and visit-able.

 

Yeah. Do it. That's a new show.

 

Oh yeah, for sure. People would watch that.

 

Oh yeah. You gotta get permission from my landlord first

 

Yeah. Ugh And that's, that's where, that's where people

 

with disabilities really get f* * *

 

because there's like microgrants and stuff that are one time

 

and it's like, am I gonna pull the trigger on this

 

for a landlord or do I wait till I have my own

 

space? You know? So

 

like, But this one's like, am I ever, I don't think I'll

 

ever own my own space.

 

Like that's just not in the cards for me at this point.

 

Right. It's ludicrous

 

that I even have an accessible

 

house. Right. Like that thing was

 

We're trying to get you out the

 

house crowdified this is the whole problem.

 

And then, and then when you have it, they streamline you

 

for institutionalization anyway

 

so it never really insulates you

 

anyway. To kind of wrap things up,

 

do you any advice for disabled people, young disabled people

 

who are kind of in your situation

 

and like, you know, thinking about moving out

 

or wanting to advocate for themselves to go

 

to their friend's house party.

 

Like, so first thing like on the house, party front,

 

whatever, if you're like looking at all your peers,

 

like do like complete these milestones

 

and like in high school, for me at least I always seen

 

and I was like, wow, I must be like a f* * *  loser.

 

Like I must not be cool enough to go

 

to the house parties like everyone's doing.

 

That's not true. I'm cool as f* *.

 

And like even like the internet, like I was allowed, yeah.

 

Like I was like, I sort of learned that

 

because like people that like I wouldn't like go

 

to house parties with, they would Snapchat me

 

and they would talk to me all day long.

 

They would like, because accessibility wasn't

 

like an issue there.

 

And they also probably didn't have

 

to like look me in the face and be like, disabled.

 

The digital spaces were actually accessible to you.

 

Yeah, they were. Which is what we saw

 

during the disability renaissance

 

during covid where we all found each other

 

Exactly. Exactly. So I would say if you think

 

that you're like not cool or not smart enough

 

or whatever for like, whatever you're wanting to do, like

 

that's absolutely not true.

 

Hop on the internet, find other disabled people

 

that like are in a similar situation to you

 

and like, whether that's like the same like mobility aids

 

that they use or like the same level of care,

 

like whatever it is, find those people

 

and like remind yourself

 

because you wouldn't look at them and say, oh you're lazy.

 

Oh you're not cool. Oh you're not smart enough

 

because you know that they are.

 

And just like remind yourself that that's you.

 

And then for people who wanna move out,

 

I would say please try your hardest.

 

Because like that's the only way

 

that it's ever gonna be made possible is like if the

 

disabled people with like more resources, more like

 

of a platform, more sway for whatever reason.

 

Like if you start normalizing it

 

and like making it through that struggle when you can.

 

That's the only way that it'll ever be possible for people

 

with less resources

 

And they have to see you.

 

Yeah. They have to see you getting ornery and angry.

 

Exactly. And trying to, trying

 

to fit in get in those spaces.

 

Yeah. Yeah.

 

And it's just like, yeah, I don't know everyone who wants

 

to do it has to do it and it sucks

 

and everything when you're disabled is extra hard.

 

But like, I just know so many people

 

who like have given up trying

 

'cause it's so exhausting. And I guess just like

 

To explain access needs over and over and over again.

 

Yeah. And like, just like don't don't just automatically

 

give up on something because you think it'll be hard.

 

Like give it a go

 

And the people worth keeping around want to help you.

 

Yeah. And yeah, that's, yeah, that's it, like,

 

People, that's how I got five degenerates in a van going

 

with me across country for a month

 

Literally. Because they're smart enough to like recognize

 

that you have cool s* * that you need to get done

 

and like they're gonna help you get that s* * done.

 

'cause otherwise they're missing out.

 

Exactly. Yeah,

 

Exactly.

 

I'm wondering if I have any advice. Yeah.

 

You know, advocate for yourself. Yeah.

 

Put put, put yourself out there. Right?

 

Like the worst you can hear is no.

 

And then you know, that person, you, you learn something

 

either way maybe that person's not worth keeping

 

around maybe, you know.

 

Yeah. Maybe, maybe there's a shift you can do,

 

But also like let it radicalize you like don't like,

 

be like thinking like, oh, this is just the way it is.

 

Like that's really s* * * for me.

 

Yeah. Be like, hey, that's super f* * * up.

 

Yeah. That this is the way it is.

 

I should be able to like have the same rights

 

as everyone else and move to a different province.

 

Yeah. If that's what you wanna do.

 

Like don't, don't like try to like brush it off as like

 

Yeah. It's easy to internalize the inaccessibility

 

Yeah.

 

That people throw at you Yeah.

 

And be like, this is a me problem.

 

Yeah. Well no, it's, it's a,

 

it's a communities problem.

 

Yeah. Right. People, other people

 

with the same rights are not, Yeah.

 

you know, dealing with any of these, you know,

 

added challenges.

 

Yeah. And you know,

 

if we do truly believe in egalitarian society Yeah.

 

And, you know, constitutional fairness

 

and all of these things, then it's gotta show up in policy

 

and we gotta have access to these things. Yeah.

 

Well, and I, I guess

 

for all my able-bodied homies out

 

there, some words of advice,

 

All three of you. You party, party party at my house

 

later, no.

 

You know, I think that, So we're not invited?

 

Is your house accessible?

 

I don't think it is

 

It's not in 4K.

 

You know, Jo, join your join, read,

 

read about the political parties in your province.

 

Go join one of them and you know, we can,

 

we can create change

 

by being active in our like, political community.

 

Yeah. When they know there's a vested interest in,

 

you know, lighting a fire under their ass when they see

 

that people actually give a shit about these issues.

 

You know, that's, that's when change actually happens.

 

Which is why we stir s* * up so often in this province.

 

Yeah. We're becoming a bit of a a,

 

a problem characters for these politicians.

 

Well, people don't know, like how,

 

like honestly since meeting you, all of this stuff is new.

 

I didn't understand

 

There's so much hidden bureaucracy. Right.

 

But no, just the idea of an accessible washroom.

 

I didn't get it until yesterday. Yeah.

 

I didn't get it until you're physically there

 

and you're in a space and you're like, whoa, this is,

 

how does this, how does the world work?

 

So many accessibility standards are done

 

by bare minimum, you know?

 

Yeah. Well and also like, if you think of like,

 

if you're able and you like come across these issues

 

and you're like, would you accept that

 

for yourself or like your family?

 

Yeah. Like, and if you're like thinking, you're like,

 

Would you go to a party where

 

you couldn't use the washroom?

 

No. Would you go to like, like if you would find

 

that unacceptable for yourself,

 

then like you should be pissed off that it's happening

 

to like your friend or your neighbor

 

or like the people around you.

 

So like talk about it and like get mad about it

 

and like, just like complain about it as much as you can.

 

Like, I don't know. That's the only way.

 

Let them have no peace. Yeah. Literally.

 

And yeah. By, by being annoying

 

and you know, stirring s* * up.

 

That is how we most efficiently affect change. Right.

 

Punk rock. Exactly.

 

That's what I say. Well y'all,

 

it was lovely chatting with you.

 

Thank you for joining me here today.

 

Thanks for having me,

 

Erin, keep continuing to roast us on the internet.

 

I will, I can do that. I will say I might live in this RV now.

 

You know what? 'cause that is a very steep ramp.

 

So that might be one with, what do we call her?

 

Roxanne? Gertrude.

 

RRoxanne. Is it Erin? Erin.

 

Erin. No. Scrap Erin.

 

Erin the, but I've always wanted to be a butcher. [Laughs]

 

So anyways, thanks for having me.

 

No problem. We will be in contact Of course

 

through social media and otherwise

 

They will never be able to escape me.

 

And that's it for Crip Trip.

 

And you can watch our show Crip Trip

 

On AMI-tv

 

And later on TVO. So please check it out.

 

AMI-tv.com

 

No, dot ca dot dot something. [Laughs]

 

It's right here on the screen.

 

We definitely know urls. That's good.

 

We should look that up.

 

Watch on AMI-tv.

 

or stream for free on AMI plus

 

TVO Media Education Group.

 

Catapult pictures.

 

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Stream the series now on AAMI Plus.